by Bethany Kerr
babyfaithhope.blogspot.com is a blog with an amazing testimony.
It is written by a 23-year-old, unmarried woman, Myah, who in her last year of university (with no maternity leave), found herself pregnant with a baby girl who was diagnosed with anencephaly, which is a birth defect considered to be "incompatible with life."
Myah was given the option to abort, but refused. She carried her baby to term, and miraculously, little Faith Hope has lived 32 days as of yesterday!
Here is Myah's testimony from her sidebar:
When I was 19 weeks pregnant, I was told my baby had no brain.... I was told my baby was only alive because she was attached to me but that she couldn't survive on her own. The doctor said I could continue the pregnancy safely, but my baby would die shortly after being born....
Or I could choose to terminate the pregnancy then, which would mean being induced at 20 weeks and letting my baby die without ever seeing or holding her (I don't even want to know what they do with babies in this case).
Well, to some people this would be a difficult decision, but it wasn't for me. I knew there was nothing to gain by terminating the pregnancy and I already loved my daughter more than anyone else in the world. Even if she was unconscious like the doctors said and lived for only a few seconds or minutes - even if she was stillborn - it was worth it to me.
And so we began our journey....
Faith's story is updated nearly every day. You can see video clips of her reacting to noises, smiling, and sitting up... And Faith Hope is not the only one. It is something most people would scoff at if they didn't see it with their own eyes. Faith Hope is a beautiful, precious little girl. Myah's blog is an amazing testimony of how beautiful and precious EVERY life is, and of how every moment counts with these little ones.
I could go on and on, but I just love this blog and read it every day since I found out about it.
Please take a moment and read the blog and watch the videos. They will melt your heart!
I am hooked as well, Bethany!! :)Posted by: Carla at March 24, 2009 11:38 AM
"I was told my baby had no brain.... I was told my baby was only alive because she was attached to me but that she couldn't survive on her own."
That's not true...there are several people with no brains (most of them in politics) that are walking and talking and moving around...*LOL*
But I digress...will include baby Faith Hope (what a great name) and her family in my prayers...Posted by: RSD at March 24, 2009 12:41 PM
She really is amazing. I've been watching her story every day as well. Myah (the mother) had to fight tooth and nail to get the hospital to allow her to have c-section that gave little Faith the best chance at life.
The hospital wasn't even going to cover little Faith's head with gauze or suction her mouth with the bulb!
Thankfully, Myah was able to convince them to give Faith this very basic care and she's been doing really well ever since.
She has a little trouble swallowing so they gave her a feeding tube a few days ago, but since then she has been regaining strength and muscle tone.
The videos are AMAZING. The whole world should watch these and take notice!Posted by: Lauren at March 24, 2009 1:04 PM
RSD! *snorts* Good point.....
I love reading that blog.
Posted by: LizFromNebraska
at March 24, 2009 1:09 PM
She's such a beautiful baby! Disability or no disability, she has obviously brought such great joy into the world and for that she is priceless.
But, just because I'm confused, has her brain started growing?Posted by: Vannah at March 24, 2009 1:09 PM
Vannah, not that I know of.
I believe the theory is that the brain develops differently when a child has anacephaly and so the brain stem is able to perform functions it ordinarally wouldn't.
For example, Faith is missing the part of the brain that would interpret sound, yet she startles to loud noises. Somehow her brain is able to interpret the vibrations and respond to them. She is supposed to have an MRI soon so that they can get a better idea about how all of that is happening.Posted by: Lauren at March 24, 2009 1:12 PM
Thanks, Lauren. I was thinking, "That was a really stupid question that I just asked." But that makes sense.
She's so precious. And I love her name.Posted by: Vannah at March 24, 2009 1:18 PM
Vannah, it's not stupid. There is something amazing going with little Faith, and no one quite knows why.Posted by: Lauren at March 24, 2009 1:21 PM
God Bless Myah and all her supporters. She is one great mommy!! I know she will be so blessed for years to come. And of course we pray that God hold little Faith Hope close to Him and help make her strong!Posted by: lovethemboth at March 24, 2009 1:23 PM
I've been praying for them both & so admire this young woman's courage & strength. God Bless them both greatly!!Posted by: klyn73 at March 24, 2009 1:50 PM
Touching. What a wonderful pro-life message this is!!! Little Faith is beautiful. I wish her all the best.Posted by: Becca at March 24, 2009 2:32 PM
Lauren, I'm so sorry...I meant to give you a hat tip. Thank you SO much for referring me to that website.
I've been reading Myah's blog for some time now. I think once again we are being shown (by WHOM, I simply can't imagine!!) that doctors simply don't have the corner on whether someone will live or die. For one thing, simply don't know enough about the brain.
There are plenty of cases of people who supposedly should be "brain" dead or just plain dead and yet who are living full lives.
Makes you wonder just who has the empty head!
Faith Hope is God's way of saying He is author of life and death, and each life has a purpose.
Posted by: angel
at March 24, 2009 2:58 PM
One of my close friends had a baby with anencephaly against the doctors pressure to abort. Grace lived for an hour. Precious girl.Posted by: Carla at March 24, 2009 3:14 PM
One of my close friends had a baby with anencephaly against the doctors pressure to abort. Grace lived for an hour. Precious girl.
Posted by: Carla at March 24, 2009 3:14 PM
I know of a woman in a similar situation. The baby lived 3 days. The doctors wanted to keep the baby in hospital but her parents took her home to die in a loving, peaceful manner.Posted by: angel at March 24, 2009 3:21 PM
I have been reading Myah's blog since Faith was two weeks old and they are both in my daily prayers. What an amazing testimony to the power of the Lord! And what an adorable baby girl!Posted by: Serena at March 24, 2009 3:28 PM
I was asking around at work last night and one of our long-term charge nurses told me that the oldest baby with anencephaly that they had as a patient on our floor was 3 months old... 3 months! I pray to see baby Faith move beyond that!Posted by: Elisabeth at March 24, 2009 7:50 PM
Well this article http://www.lifesitenews.com/ldn/2008/aug/08082201.html mentions a Brazillian baby who was anencephalic who lived 1 year and 8 months. I don't know if that's the longest, but it's a lot longer then many would have given her.Posted by: Bobby Bambino at March 24, 2009 7:57 PM
Well, The doctors didn't hold out hope for me. When I was born in 1979, I waid 1 pound, and 5 ounces, and I was 11 inches long. The doctors only gave me a 2 percent chance of sirviving, and by God's grace I turn 30, this year! My God, likes it when the doctors, give babies no hope what so ever, and the parents choose to trust in God, and God comes throught for the parents, and the doctors are blown away! My God, The Lord Jesus Christ, well... He has his own plans and know one can stop them! RJPosted by: RJ Sandefur at March 24, 2009 8:01 PM
God is with us this day...
Posted by: Eileen #2
at March 24, 2009 9:38 PM
(Someone on this site has said this before and it came to me while reading about these precious girls.)
What a wonderful story you have. You are truly blessed!
Travis Andrew, who had hydranencephaly and lived to be almost nine:
Thank you YCW. What a precious, beautiful boy!! I am praising God today for knowing so much more than I. For choosing a little boy with no brain to show His love to the world, for His glory and our good. Travis Andrew is whole now.Posted by: Carla at March 25, 2009 9:05 AM
Hot dang... thanks for the links, guys.
RJ, don't feel bad. When I was born in 1972 with hyaline membrane (now known as respiratory distress syndrome) the nurses told my mom I would not possibly live (these were the days before surfactant) and drugged her for three days to prevent her from bonding with me... so it would be less painful for her when I died.
The only thing they accomplished was that lack of bonding. I not only didn't die, I was home from the NICU two weeks later. My mom and I have, however, never connected.
Maybe that's why I always fall in love with the little "lost causes" on our floor. Those babies are my heart.Posted by: Elisabeth at March 25, 2009 4:57 PM
Unfortunately the baby is never going to improve. She's not going to grow a brain. She'll continue to be blind and insensate, and before long she'll die. So what will you have proven; that she could last a few weeks outside the womb? Should we all be impressed? The kinder thing would have been to abort when anencephaly was first diagnosed.Posted by: HistoryWriter at April 17, 2009 6:20 PM
Wow, HistoryWriter, thank you for proving that so many in the pro-choice movement think it is KINDER to hack a child to pieces than allow her to live out her natural life with her mother who loves her.
And thanks for demonstrating that you think the choice of death is the best "choice" for a child who was wanted by her mother.
She isn't insensate. And we're all going to die, so what's YOUR point? Should we all be impressed with your mindless, insensitive comments?Posted by: Kel at April 17, 2009 10:03 PM
So you'd say that there was a "moral obligation" to abort, HistoryWriter?Posted by: Bobby Bambino at April 18, 2009 8:56 AM
You have to understand that by undertaking "God" or any other divine deity as the reason for life, then you're taking away what is precious about life. By theorizing "God" as your creator and your taker, then you lose any reason on why life means so much more. We have only one life to live, that's scientificially proven. What you do after you die is the ramifications of your thoughts and hallucinations. I can sympathize for the mother here, I have friends and family who have had their babies diagnosed with the same illnesses. They're lovely people, Christians in fact, yet they chose to abort because they know it's futile to even bring themselves to love and lost. You're also paining the baby itself by exposing it to something that it cannot feel, a lost cause. This in no absolute way has anything to do with God, this is logical and human sympathy. You don't need a God to rationalize a reason to live nor die.Posted by: HistoryWriter at April 21, 2009 4:35 PM
"You have to understand that by undertaking "God" or any other divine deity as the reason for life, then you're taking away what is precious about life. By theorizing "God" as your creator and your taker, then you lose any reason on why life means so much more."
How do you figure? Where would any overall meaning come from if not from a transcendent source? What outside of oneself makes life precious?
"We have only one life to live, that's scientificially proven."
It is not scientifically proven. In fact, you can not prove it scientifically because it is a metaphysical claim. But I'm curious as to what science you had in mind that would prove such a thing.
"What you do after you die is the ramifications of your thoughts and hallucinations."
How do you know this, HistoryWriter? What evidence can you offer anyone to convince them that this is true?
"You're also paining the baby itself by exposing it to something that it cannot feel, a lost cause."
What is the moral principle that you base the fact that "because someone will only suffer, we should directly kill them" on? It seems to me you're operating from a utilitarian worldview, and just simply asserting that your worldview is correct.
"You don't need a God to rationalize a reason to live nor die. "
I would LOVE to hear a rational arguable for why life has any meaning without God. Because, HistoryWriter, in 5 billion years or so the sun will burn out and the human race will become extinct, making anything and everything we do completely pointless. The universe will go back to the way it was before humans came into being. In light of all this, how in the world does anything we do make the slightest bit of difference in any large scale amount of time?Posted by: Bobby Bambino at April 21, 2009 4:47 PM
This baby is amazing and beautiful. She deserves every right to live just like the rest of us. Myah is doing a wonderful thing for her baby girl regardless of how others view it. I would much rather have my child in my arms for a minute than never at all. This beautiful little angel will leave this world in the arms of love and I can't think of a better way to go. Shame on those people who cannot see the love this baby is getting. How dare any deny her that love!!Posted by: luvmylittleboys at April 25, 2009 1:40 AM
I am an atheist and I am so touched by Myah's and Faith's story. It is heartbreaking that Myah's pregnancy, a time typically filled with hope and plans for the future, was filled with fear and the knowledge that her baby would not live long, if at all.
Most of you see Faith's survival as God's work, and I see it as a sign that Faith's brainstem developed enough to support her basic functions (which is not unusual in anencephalic babies, especially those delivered by C-section). Either way a loving mother has been able to spend two months (at this writing) with her daughter, feeding her, tending to the dressing over her exposed brainstem tissue, creating a record of her life. It's what parents do. Myah clearly knows Faith is fragile and will likely succumb to the first infection that hits her. She is also clearly grateful for the time she has with her.
HistoryWriter, I have two children. They are going to die someday. By your logic I should have aborted them because they're facing a death sentence anyway. The thing is, though, we're all facing a death sentence. The ratio of human life to human death stands at exactly 1:1.
Most people on this blog see Faith as an example of God's work in the world. I see her as an example of what can happen if a woman's diet lacks folic acid in the early weeks of pregnancy. What we can agree on, though, is that Faith is not suffering, and she's in the hands of a mother who loves her. Every child should be so lucky.
Posted by: peacebeginswithme at April 25, 2009 5:28 PM
peacebeginswithme, THANK YOU. although i am a devout catholic i have yet to see an atheist respond with such grace and kindness towards myah's and faith's situation. she has a facebook prayer group and has become the victim of vicious, horrible attacks; atheists have been calling her baby terrible names and suggesting that vile, cruel things be done to her, and i've never been so disgusted by people before, and they have all been atheists who harp on her for her beliefs and faith in God.
although you and i obviously differ in religious beliefs, i again want to thank you for showing me that there are some good people out there who don't share my faith in God, because i was truly doubting.Posted by: aprincessunknown at April 27, 2009 11:28 PM
My sister had a baby with spina bifida. The baby lived for about a month. She was cared for, loved, and mourned when she died. Depriving a baby of the little life it has is cruel and insensitive. God is the author of life. We have no right to cut the life of an innocent baby short because it is not perfect!Posted by: Nic Samojluk at June 28, 2009 12:58 PM